A Problem with “The Down syndrome” Narrative

In the Down syndrome (Ds) community, there are those who oppose awareness campaigns citing the “disability porn” problem.   The basic argument being that people with Ds are not always happy, cute, “angels” and they should not be used as instruments of inspiration. I agree – to a point.  I fully support the right of anyone … Continue reading

Confessions of a confused special needs parent

#RaceAndDownsyndrome

When a child has “special needs” he/she is not the only one who gets a label.  Suddenly, the parents are “special” too. You’re expected to be so many things: teacher, therapist, advocate… the list goes on and changes from day to day. “Special needs parent” can be a heavy identifier. One of the good things … Continue reading

Race and Disability – An issue that needs more awareness #DSAM2014

We all have equally fabulous lives

According to a study published in 2002, the life expectancy for white people who have Down syndrome is at least twice that for people of color who have Down syndrome. Differences among racial groups in general, and the heart defects typically associated with Down syndrome do not account for the extremely large gap that this … Continue reading

Dreams, big, small, & gargantuan

USA road trip map

  Every now and then, I get the urge (and the time) to dream. Sometimes it’s a small dream, like, “wouldn’t it be nice to have a huge chocolate sundae?” Sometimes it’s a little bigger and involves finding just the right job or place to live.  Every now and then I allow myself the luxury … Continue reading

Josh Goes to University – and The World Down Syndrome Congress in Vancouver

My Friends Will Help Me

From the archive. While in Canada, we had the unique opportunity to have Josh included in a typical university course on “Disability and Society.”  The majority of the students were education majors.  The professor and I created an emancipatory research approach – which means Josh was aware of the project and included in the decision … Continue reading

DEENA'S DAYS

MUSIC and SPORTS, what else is there?

Hot Dogs and Marmalade

Salty like hot dogs (and tears). Sweet like marmalade (and life).

Relative Truth

It is imperative that truth be factual and not founded on what we opine.

CountyRoadChronicles

Tracy, daughter of the King, wife to the knight, Mom to a quiver and Gram to some shorties. .

Walkersvillemom

Writing on "Joshisms," Down syndrome advocacy, and #JusticeForEthan

Value. Acceptance. Inclusion.

A View from the President of the National Down Syndrome Society

National Day Calendar

Fun, unusual and forgotten designations on our calendar.

How to Raise Benevolent Dictators

The Best Parenting Blog Ever that you barely heard of

Proactive Indian

Reflections on everyday life in India and elsewhere

Whoopsie Piggle

An Ohio family full of whoopsie pigglery: personal, political, always questioning

Disability in Kidlit

Reviews, guest posts, and discussions about the portrayal of disabilities in MG/YA fiction

Scope's Blog

Scope exists to make this country a place where disabled people have the same opportunities as everyone else. Until then, we'll be here.

Growing in Faith

Learning to follow where the Lord leads me...

Peaches & Politics

I'm just a bruised peach, waiting for the dust to settle.

It Starts With A Voice

Promoting the acceptance and inclusion of people with intellectual disabilities

Plucking Of My Heartstrings

Blogging on a variety of things that pluck at the hearts' emotions & more

Parent Your Business

When I'm not parenting, I'm working. Or doing laundry.

Eggfacemomhead

Secrets from the zoo