“Although personal interaction is the most effective medium for conveying the personal experience of disability, the mass media can be an effective vehicle for bringing about greater understanding, and a consequent gradual change in public perceptions, of people with disabilities.” – Marilyn Dahl (The Role of the Media in Promoting Images of Disability- Disability as […]Read More Why The Discussion About #BornThisWay Is As Important As The Show Itself
I’ve been waiting for what seems like F-O-R-E-V-E-R to see Born This Way on A&E. I can honestly say it did not disappoint! I started getting goosebumps when I saw cameras following my friend Sean around the NDSC convention in Phoenix. The idea of someone I knew being on network television was surreal. The idea […]Read More #BornThisWay – Reactions from Josh’s Mom
At first glance, as a parent of someone who has Down syndrome and is almost 29-years-old, assisted suicide seems far from my radar – at least as a topic that pertains to my own life. I could imagine the questioned looks as I shared the announcement about the impending Twitter chat with other Ds moms. […]Read More What does Down syndrome have to do with assisted suicide?
What I’m really trying to say…. As I pondered this prompt (Thanks Mardra!) and thought about what type of information I’ve been putting out in the universe lately, I had to pause. For those who don’t know me, (and maybe to some who do) my writing may appear to lean toward the negative. Am I […]Read More Be the Change You Wish to See
As a parent advocate, I believe strongly in the adage, if you’re not part of the solution, you’re part of the problem. That’s why I started The Road We’ve Shared. I saw that there was no “space” for parents of adults who have Down syndrome, so I made one. I never expected that my blog post […]Read More How Do We Turn This #UnacceptableExample Around?
There’s an article making the rounds on Facebook with the title “Plane passenger asked teacher a rude question about her job. Her response is PERFECT!” The video featured comes from the YouTube account of the Campaign for America’s Future with this description: “National Education Association president Lily Eskelsen García explains the vital work of public school […]Read More President of NEA Says Teachers Have to Adapt Curriculum for the “chronically ‘tarded and medically annoying”
The world we live in can be a scary place. Anyone who watches the news or spends any time on social media is inundated with stories about people who have ulterior motives. We’re socialized to mistrust, even when people are trying to do good. I get it. As a mother of a child who has […]Read More Why Do I Care? #CountUsIn
Originally posted 10/03/2013 Reposted in honor of Rowdy Roddy Piper In honor of Down syndrome Awareness month, allow me to further introduce Josh. I’ve talked many times about his love of music, costumes, and all things “Rock Star,” but what else is there to know about Josh? Plenty! While I was in graduate school in Toronto, Josh […]Read More Getting to know Josh – WWE, Heights, oh yeah, & Baseball
How many of your birthdays do you remember in great detail? For me, it’s pretty much the biggies, 16 and 21, because of the privileges that came with them. Yet, as parents, we try to create THE perfect day every year for our kids. Today, my son Josh, celebrates his 28th birthday. He has expectations […]Read More Bittersweet Birthday
For years, I may have been complicit in the act of “passing.” My son’s skin is a beautiful tan in the summer, but for the most part, it could be described as “olive.” His father has been out of the picture for most of his life, and my own flesh is pasty at best. […]Read More On Being an Ally: Passing, Participating, and Pondering My Place