I’m one of those people who believes that everything happens for a reason. There is, however, one aspect of my life that I struggle to comprehend – why certain members of my family choose not to know my son. I know that it has more to do with me, my faults, and mistakes. I’m the […]Read More What Being Rejected By Family Has Taught Me about Down syndrome Awareness
Every now and then, I get the urge (and the time) to dream. Sometimes it’s a small dream, like, “wouldn’t it be nice to have a huge chocolate sundae?” Sometimes it’s a little bigger and involves finding just the right job or place to live. Every now and then I allow myself the luxury […]Read More Dreams, big, small, & gargantuan
From the archive: Originally published 4/21/13 Full disclosure first – in my previous life (my career for 15 years or so before I went back to college full time) I was a trainer. That’s what I did for a living. I was the one who had to convince the “powers that be” that we needed […]Read More To Train or Not To Train? – #JusticeForEthan
I’m still so happy that I was able to attend the National Down Syndrome Congress Convention in Indianapolis that I thought I’d share my favorite version of “Happy” by Pharrell Williams. If you’d like to read more about my trip, head over to The Road We’ve Shared.Read More Music Monday – Happy in Indianapolis!
Well, today’s the day! I’ve spent the past three days freaking out. There’s nothing left but to do it. I had to familiarize myself with the flying rules again. I used to travel a good deal for my job but it’s been years since I’ve been on a plane. Yes, I looked up the new […]Read More Goin’ to Indy!
Welcome Josh! (and the snow) Initially written and posted Januay, 2013. Re-posted today as part of the #NeverAlone campaign on @Lettercaseorg When Josh was born, I was 20 years old and single. I was thrilled and prepared (or so I naively thought) for what that meant. I was also completely ignorant about the path my […]Read More Josh is born! (Our beginning)
Have you been following the news out of New Jersey? I have, partly because I was born there (Camden, to be exact but we didn’t stay long), but mostly because of the possible implications of what’s happening. We all know that law suits and state legislation can end up setting a precedent that everyone has […]Read More 2 Cent Tuesday – What’s Happening in New Jersey?
Originally posted 2/6/14 As with any good project or relationship, learning is part of what you trade. If you’re committed and serious about the venture, you share yourself with the people involved and you’re open to new experiences and ways of looking at things, even if it’s uncomfortable. This week I’ve experienced two situations […]Read More Self-reflection / Sharing Stories – From the Archive
This post was originally written for a blog hop to celebrate March 21st 2013 – what we call 321 Day in honor of Trisomy 21. According to YourDictionary.com, the definition of an advocate is: someone who fights for something or someone, especially someone who fights for the rights of others. When my son was born, […]Read More Defining, and re-defining Advocate – From the archives
Do you love someone who has Down syndrome? Let the world know with this new T-shirt from “The Road We’ve Shared.” You’ll also be helping to spread the word about the new online community for / by parents and caregivers of adults who have Down syndrome. All funds raised will go toward […]Read More New “I Love Someone who has Down Syndrome” T-shirt / fundraiser