Race and Disability – An issue that needs more awareness #DSAM2014

We all have equally fabulous lives

According to a study published in 2002, the life expectancy for white people who have Down syndrome is at least twice that for people of color who have Down syndrome. Differences among racial groups in general, and the heart defects typically associated with Down syndrome do not account for the extremely large gap that this … Continue reading

2 Cent Thursday – When the Truth Hurts

2 cent Tuesdays on Walkersvillemom

This one couldn’t wait until Tuesday – I hope you’ll forgive me. Two articles recently published in The Daily Mail (UK) have caused a great deal of hurt in the Down syndrome community.  I’ve always believed in the notion that each person has a right to their own perspective – their own truth.  Along with … Continue reading

Day 8 – Trees, Accreditation, and Continued Support – 8 MORE Days of #JusticeForEthan

From the Archive As I bring this chapter to an end, there are three things I’d like us to do in this, the final week of 8 MORE Days for Ethan: Celebrate Father’s Day with the Saylors by planting a tree in Ethan’s honor. Let the committee from CALEA know why we think the Frederick … Continue reading

A Few of My Least Favorite Quotes – #JusticeForEthan

From the Archive: Originally posted 4/15/13 There have been so many things said and written about the events of January 12th.  Some have been inspirational and give me hope.  Those things have come from other families who are outraged and saddened by Ethan’s death. There have also been things that have made me furious! Those … Continue reading

#JusticeForEthan – Awareness

From the Archive: Originally posted 9/23/13   Let us not look back in anger, nor forward in fear, but around in awareness. James Thurber October is National Down Syndrome Awareness month.  I’ve been thinking about what I want to do and how it applies to #JusticeForEthan.  I think the quote above pretty much says it … Continue reading

#JusticeForEthan – Truth Seekers

Governor O'Malley hides from reporters

From the Archive: Originally posted 9/19/13   Truth will ultimately prevail where there is pains to bring it to light. George Washington   The hunt for truth continues thanks to Debra Alfarone and WUSA9.  She has said that she tries to contact Governor O’Malley and Sheriff Chuck Jenkins for comment every week, and they don’t … Continue reading

#JusticeForEthan – Time to Break the Silence

From the Archive: Originally posted 9/11/13 Today I was happy to wake up early (anyone who knows me knows that’s rare).  But today was the interview with Debra Alfarone on radio blog with Gail Zahtz.  I was hopeful that we’d get to hear why Debra was the only one in television who seemed to understand … Continue reading

Beware: Comments May Be Unsuitable for Reading – #JusticeForEthan

From the Archive: Originally posted 9/7/13 The Frederick News Post is trying to gauge public support for the #JusticeForEthan movement.  They posted a Yes/No/Not Sure poll, and a link to their Facebook page where visitors can leave comments.  Both are available in a sidebar included in an article in Friday’s paper. The poll has been … Continue reading

A BIG ShoutOut to “The Dads” – #JusticeForEthan

From the Archive: Originally posted 9/3/13 I want to take a moment and recognize the Dads out there who have been vocal and passionate about #JusticeForEthan.     Anyone can be a father but it takes someone special to be a Dad.       Before anyone complains, I realize that this post may appear … Continue reading

WOW!! FABULOUS Reporting by Debra Alfarone @WUSA9 – #JusticeForEthan

Debra Alfarone of WUSA9

From the Archive: Originally posted 8/12/13     Turns out Ethan and his aide bought two tickets that night when, according to the ADA, a caregiver is NOT required to pay. More HEARTBREAKING news! Great reporting – THANK YOU Debra Alfarone!   Turns out #EthanSaylor may not have needed a 2nd movie tkt when deputies … Continue reading


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