• about.me

    Stephanie Holland

    Stephanie Holland

    Mom, advocate, life-long learner

  • A to Z 2014

Visiting The Trail Of Injustice #JusticeForEthan

From the archive: Originally posted May, 2013 Josh and I visited the places that hold answers to many questions within their walls.   First, the theater.    This place holds many secrets.  Within its walls are the answers we seek.  How did an evening of recreation turn into something so sad?  The walls aren’t talking. … Continue reading

Comply or die

It’s a “Pride” Issue – Erica Garner

  Last night, Erica Garner told Don Lemon on CNN that she didn’t really think the issue is race.  To her, it looked like the NYPD officer who killed her father wanted to prove he could take down a “big guy.” To me, it boils down to one fundamental conflict in our society.         … Continue reading

Advocacy After ABLE

Advocacy After #ABLE

  Congratulations to all those who worked long and hard hours on getting the ABLE Act to a vote today. Just in case anyone is looking for a new cause to champion – here’s a few ideas that could greatly impact adults with Down syndrome : #RaceAndDownSyndrome – Investigate health disparities for people of color … Continue reading

Victims of police violence

More Than One Lesson from Ferguson – Independent Investigations Needed

Michael Bell, 21 – Killed in Kenosha, WI  11/9/2004 Ethan Saylor, 26 – Killed in Frederick, MD 1/12/2013 Michael Brown, 18 – Killed in Ferguson, MO 8/9/2014   What do these three young men have in common?  At first glance, not much.  But all three were killed by someone who had taken an oath to … Continue reading

A Problem with “The Down syndrome” Narrative

In the Down syndrome (Ds) community, there are those who oppose awareness campaigns citing the “disability porn” problem.   The basic argument being that people with Ds are not always happy, cute, “angels” and they should not be used as instruments of inspiration. I agree – to a point.  I fully support the right of anyone … Continue reading

#RaceAndDownsyndrome

Confessions of a confused special needs parent

When a child has “special needs” he/she is not the only one who gets a label.  Suddenly, the parents are “special” too. You’re expected to be so many things: teacher, therapist, advocate… the list goes on and changes from day to day. “Special needs parent” can be a heavy identifier. One of the good things … Continue reading

We all have equally fabulous lives

Race and Disability – An issue that needs more awareness #DSAM2014

According to a study published in 2002, the life expectancy for white people who have Down syndrome is at least twice that for people of color who have Down syndrome. Differences among racial groups in general, and the heart defects typically associated with Down syndrome do not account for the extremely large gap that this … Continue reading

2 cent Tuesdays on Walkersvillemom

2 Cent Thursday – When the Truth Hurts

This one couldn’t wait until Tuesday – I hope you’ll forgive me. Two articles recently published in The Daily Mail (UK) have caused a great deal of hurt in the Down syndrome community.  I’ve always believed in the notion that each person has a right to their own perspective – their own truth.  Along with … Continue reading

Day 8 – Trees, Accreditation, and Continued Support – 8 MORE Days of #JusticeForEthan

From the Archive As I bring this chapter to an end, there are three things I’d like us to do in this, the final week of 8 MORE Days for Ethan: Celebrate Father’s Day with the Saylors by planting a tree in Ethan’s honor. Let the committee from CALEA know why we think the Frederick … Continue reading

A Few of My Least Favorite Quotes – #JusticeForEthan

From the Archive: Originally posted 4/15/13 There have been so many things said and written about the events of January 12th.  Some have been inspirational and give me hope.  Those things have come from other families who are outraged and saddened by Ethan’s death. There have also been things that have made me furious! Those … Continue reading

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